Leo

Hydrocephelous + encephalocele special needs orange kitten and one gray kitten, resting on a soft pink blanket.

Our One in a Million

Leo and his siblings ended up in a rural Louisiana shelter with an end of day shelter due their age. Upon arrival it was obvious that Leo was different with his extra large head. Our neurologist, Dr. Boogie Yates, was able to determine that Leo was born with a significant open fontanelle and had cerebral spinal fluid and brain matter protruding through his skull.

Scenic landscape with a large mountain range, a lake in the foreground, and rolling hills covered in grass and shrubs.

Given the rarity (need a different word) of Leo’s case we never felt confident moving forward with surgical options, which was in agreement with his neurologist’s opinion. One of the main reasons was that Leo’s CSF production was not stagnant and at the time it was still unknown to what degree it could decrease as he grew.

Instead, once his bubble reduced enough, we pursued a custom helmet designed by -find their name, a physical therapist? find their actual occupation. This was a huge milestone because keeping his brain safe with no skull to protect it had been one of the biggest concerns for us from the beginning. Leo practiced with several prototypes to get comfortable wearing his headgear and as he always was he was perfect for training.

Build it.

Since he was a tiny little kitten Leo required daily medication to reduce the amount of CSF his body was producing to prevent his bubble from growing larger and affecting his quality of life. Fortunately for Leo medically managing his hydrocephalus was very effective and even led to his bubble decreasing in size!

For most of his life Leo had been too small and his bubble too large for really a safe options to correct his condition. As he grew we reached out to folks all over the country to see if there are surgical options they’d be comfortable and confident performing on Leo and while there have been several who were willing to take on Leo’s case none had experience with his specific condition (having an open fontanelle as well as hydrocephalus).

A theoretical surgery for Leo would include two parts - some sort of cover to act as a pseudo skull to protect his brain and a shunt to drain the excess CSF. Essentially the hole in his skull acted as a sort of relief valve for the excess fluid. If it were to build up in a confined space it would put pressure on his brain causing a host of potential issues.